E. Michael D. Scott, who describes himself as “a patient, a patient advocate, a patient educator, and a professional health care communications specialist” has a new article in the Journal of Participatory Medicine, “The Term “Patient” May Describe Me … But It Does Not Define Me.” The article is introduced by a Journal editor’s note, [...]
On the eve of the FDA’s Avastin announcement last night (and with no apparent reference to that important contextual point – although I acknowledge I didn’t see the entire newscast), the NBC Nightly News last night attempted to report on the problem some patients encounter in the face of an awful economy and astronomical cancer [...]
e-patient Dave urged me and convinced me to join the Society for Participatory Medicine, and then he posted a kind note about my joining and about the work we’re trying to do on this site. That work has many overlapping goals with the Society’s. Under the masthead of the Society’s website it reads: Participatory Medicine [...]
“Why Big Pharma should buy your doctor lunch sometimes” is the headline of an article on Slate.com that has upset many readers. I’m not terribly upset about it because it just seems too naive and misinformed to get upset about. The final line of the piece tells you all you need to know about the [...]
People are not dumb. Even if – or maybe especially if – news stories don’t point out the limitations of observational studies and the fact that they can’t establish cause-and-effect, many readers seem to get it. Here are some of the online user comments in response to a CNN.com story that is headlined, “Coffee may [...]
E-patient Dave (Dave deBronkart, diagnosed two years ago with stage 4 kidney cancer), blogs today under the headline, “e-Patients and doctors both, wise up. If you haven’t already.” If you don’t know about Dave, you should. He’s one of the hottest speakers at health care meetings these days. He begins today’s blog: “I’ve only been [...]
Last Sunday I spoke at the National Breast Cancer Coalition Foundation annual conference. There were about 800 people in the audience, so it’s understandable if I didn’t meet (or don’t remember meeting) breast cancer advocate Sandra Spivey who was in the crowd. She got back home from the meeting and did what I told all [...]
Well, the NBC Today Show’s “Inside the O.R.” series this week has certainly generated blogger criticism. Earlier we posted Larry Husten’s scathing review of the segment on atrial fib ablation. Now Amy Romano on the Science & Sensibility blog has written about her concerns about the live cesarean section delivery that was part of the [...]
Patient advocate Trisha Torrey writes and talks a lot about “participatory medicine.” Today she writes: “While many of us patients truly want to participate in our own care, we’re not finding a great deal of cooperation from the others who must participate – our providers. Some providers get it! In fact, some are very cooperative, [...]
A news story – it’s not labeled as an editorial or as an advertisement – on a New Jersey news website bemoaned how “doctors will soon be forced to scale back or discontinue medical imaging services, due to the major reimbursement cuts recently released in the Centers for Medicare & Medicaid Services’ (CMS) 2010 Physician [...]
Better than a competing piece by Reuters but still a little short on some details about this asthma drug study.
An adequate summary of this asthma drug trial’s design doesn’t make up for the overly optimistic tone about the drug’s future. A New York Times story was better.
This story focuses on a family that may have a rare genetic mutation that increases their risk of heart disease. Unfortunately, the “rare” part wasn’t mentioned until 1,600 words into this 2,100 word story.
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