e-patient Dave urged me and convinced me to join the Society for Participatory Medicine, and then he posted a kind note about my joining and about the work we’re trying to do on this site.
That work has many overlapping goals with the Society’s. Under the masthead of the Society’s website it reads:
Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners.
And you should know about the Journal of Participatory Medicine, whose mission is to “transform the culture of medicine to be more participatory,”