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Learning to Say No to Dialysis

Rating

4 Star

Tags

Learning to Say No to Dialysis

Our Review Summary

This thoughtful article about dialysis for older people with kidney disease captures the dilemma that many elderly patients must go through: whether they wish to endure the often difficult, inconvenient, and unpleasant task of frequent trips to a renal center for dialysis or to live out their days having the end of their lives managed without it.  Since the cohort being discussed here — people over 75 with kidney failure and other chronic diseases — face imminent death (nearly 60 percent die within a year of starting dialysis), it is heartening that these vital questions about the medical intensiveness of the last year or so of a life are being asked. The article includes useful quantification of the disease in question, the concerns of patients, and the fact that the needs of patients might not be solicited.

 

Why This Matters

This piece describes the reality of a common, costly, and time-intensive medical intervention, then identifies a major flaw in its execution: many patients don’t understand what they’re getting into, and wouldn’t proceed if they did. The emphasis on shared decision-making is key.

Criteria

Does the story adequately discuss the costs of the intervention?

Not Satisfactory

The article could have included some quick facts about the cost of dialysis, as well as the costs of transportation, hospital time and nursing costs that are all involved in being treated as an out-patient at a renal clinic. There was one reference to costs when the story says that, in terms of time, dialysis treatment was “the equivalent of holding down a part-time job.”

Does the story adequately quantify the benefits of the treatment/test/product/procedure?

Satisfactory

The article cited appropriate studies for a range of statistics.  We learn, for example, that “58% of patients died within a year of beginning dialysis” and that about 40% of patients over 75 with end-stage renal disease die within a year. We also learn about the concerns of the patients, including the fact that 61% of patients in one study said they regretted starting dialysis. It adds that “withdrawal from treatment accounted for about a quarter of deaths of dialysis patients in 2006,” though that seems a little unsatisfying in terms of what additional lifespan might be attributed to dialysis. Another fact included is that 66% of patients in one study told researchers that their doctors had not mentioned the treatment’s risks or burdens, and they felt they had no choice.

Does the story adequately explain/quantify the harms of the intervention?

Satisfactory

Harms are explained in terms of the side effects of the dialysis, the pain, nausea and feeling “dizzy, washed out.”  It was good that the article explained that the harms of dialysis are also measured in other ways: the disruption to a person’s life, the need to travel and go in and out of facilities, and the effects on their independence, which can be debilitating for older people.

Does the story seem to grasp the quality of the evidence?

Satisfactory

Numerous studies, surveys and statistical analyses are cited in the article, which adequately back up the main points that it is making.

Does the story commit disease-mongering?

Satisfactory

If anything, this article is protective against disease-mongering. It questions the idea that everyone with a particular disease should get treatment, regardless of other factors.

Does the story use independent sources and identify conflicts of interest?

Satisfactory

There are numerous sources both quoted and cited in the story, so we are giving it a pass here. At the same time, we would have liked to have heard the evidence-based opinion of a strong advocate for end-of-life dialysis. The counterpoint in this case might have been a doctor saying that patients have a hard time sharing in decisions or sometimes do not want to do so.

Does the story compare the new approach with existing alternatives?

Satisfactory

The article mentions peritoneal dialysis, which can be done at home, but fewer than 10 percent of patients opt for that. It would have been useful to know why home-based dialysis is so underused.

Does the story establish the availability of the treatment/test/product/procedure?

Satisfactory

The story presents it as a given that dialysis, renal clinics and so on are common in the health system.

Does the story establish the true novelty of the approach?

Not Satisfactory

What might be considered “novel” is the fact of saying “no” to dialysis. What we don’t learn is if “saying no” to dialysis is that novel of a concept. How do other countries treat the question? Are rates of dialysis in the US that much different than other countries? An international comparison would have been welcome here.

Does the story appear to rely solely or largely on a news release?

Satisfactory

This article does not in any way appear to rely on a news release.

Total Score: 8 of 10 Satisfactory

Comments (1)

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Paula Span

April 2, 2015 at 11:32 am

I’m pleased that the reviewers found my New Old Age column mostly satisfactory. Let me clarify that one of the statistics you cite — 58 percent mortality within a year of initiating dialysis — refers to nursing home residents, a population that almost by definition is frailer and less healthy than older adults living in the community. The finding comes from this 2009 study by Tamura, Covinsky et. al. in NEJM: http://www.nejm.org/doi/full/10.1056/NEJMoa0904655

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